Well, as I stated in the last blog, I was to see the Disability doctor on October 24. I did and he was very good and very through. And was wondering why I was still working and not on Disability. Well, as usual, the answer was they say I have gainful employment. He was not happy with that either!! But he is only the doctor they have to evaluate me. So if he had his way, I would have had Disability a long time ago. So hopefully what he writes to them will be the right thing. Although, again, it is not up to him, my future is still in the hands of people who do not have to worry about a light bill, rent, or any other bills to pay!!!! Duh!!! They work full time and have execllent Govenrmnet Benifits that you and I pay for. We pay for everything they get, yet we get absolutley nothing from them when we need it!!!!! The doctor told me of a clinic that would help me with my RA and told me where to call. Well, another down fall. The lady I talked to said that after 40 yrs. the hospital closed the clinic down. So back to round one.
Okay, now for a more positive bit of good news. I was approved by the drug company, Abbott Laboratories for free Humira for one year. This gives me a three months supply of shots at a time and is good from October 15, 2009 to October 15, 2010. So on a good note, there was a small bit of sun from this. At least until I can get some help from our WONDERFUL GOVERNMENT, this will be of some help!! Until then, I will continue to work my 15 hours a week at minimum wage and be "gainfully employed". Hope I pay enough taxes in on all that money I'm making. Wouldn't want that on my head. That millions I make at minimum wage at 15 hours could break me if it wasn't taxed right!!!
So in the end of this post, just remmeber, you work for the GOVERNMENT, and they DO NOT WORK TO HELP YOU, unless you are one of them and don't need the money to begin with. If you are one of them you have nothing to worry about!!!! If you are like me, just keep paying them and don't expect to get anything back from them. Maybe I should write something that would make them want to follow what I write and see if that would follow me for months before doing anything about it. Maybe I should write things that would scare them like everyone else does. Seems they follow every move they make, but they don't do anything about them either til they do something bad. Then it is oops, we've been watching him. Wonder should we have acted faster thatn we did!!!!!
Sunday, November 8, 2009
Friday, September 11, 2009
Hopeful of help
Well, it has been a while since have written anything, but there has been nothing to wrtie. It is always hurry up and wait!! Well, after 3 months of not hearing anything from SS Disability, I finally have to go see their doctor. On October 24, 2009 I have to take a trip to Statesboro to have SS doctor take a look for himself and see just how disabiled I am. Wish they had someone to follow me around and they would see. That's asking way too much of them. Anyway, they needed more information and "proof" about the reason I am asking for disibility. Go figure, I have to have proof. Just because my atty. sent them pictures of my disibility and all the paperwork from my doctor here in Savannah and my RA doctor in Atlanta. This wasn't enough, they need more. My doctor here signed all the paperwork they wanted her to sign and she told them I needed disability and had no business working in the shape I am in. She said even 12 to 15 hours a week was too much for me to be working. But they have to have a doctor that they hired to take a look at me. How biased is that????? Anyways, I have been living on predisone for the past 3 months. Every other week I would have to call my doctor in Atl. to get me more predisone. It went from a 7 day medpak at 7.5 milagrams to a ten day medpak of 10 milagrams. Now I can't get him to give me anymore because I have had so much in the past 3 moths. In July I was off of the predisone about 3 days out of the month. In August it was a liottle better, but he has given me all I am going to get. So I guess I will have to make an appt. with my doctor here for more. Thank God they do ot contact each other before they give me the meds!!!
Back to the original matter at hand. I am looking forward to this trip to Statesboro. This doctor has no idea what kind of shape I am in. Will be interesting to see his reaction to the way I can't do things. I have to have my husband help me in and out of my clothes, fix my hair, and sometimes tie my shoes or other things where I have to move in certain directions. I even have trouble getting in and out of the tub. So he has to help me do that to. Oh and there is a travel voucher in the paperwork I got. It says they will give me 47.00 for mileage and food for the trip. Remember it took me almost a year to get 160.00 out of them. Can't imagine how long it will take to get 47.00 out of them !!!!!! Oh, well, will gve you guys an update after I have gone to the doctor a month from now. Lots of laughs on that one.. A month away, do they really think a month is going to make any difference in my condition???
Back to the original matter at hand. I am looking forward to this trip to Statesboro. This doctor has no idea what kind of shape I am in. Will be interesting to see his reaction to the way I can't do things. I have to have my husband help me in and out of my clothes, fix my hair, and sometimes tie my shoes or other things where I have to move in certain directions. I even have trouble getting in and out of the tub. So he has to help me do that to. Oh and there is a travel voucher in the paperwork I got. It says they will give me 47.00 for mileage and food for the trip. Remember it took me almost a year to get 160.00 out of them. Can't imagine how long it will take to get 47.00 out of them !!!!!! Oh, well, will gve you guys an update after I have gone to the doctor a month from now. Lots of laughs on that one.. A month away, do they really think a month is going to make any difference in my condition???
Saturday, August 29, 2009
More and More
Okay. We got the 160.00 from Atlanta SSO finally. It took almost a year but it finally came around the end of June. So that said and done, that is the last thing that SS has done.
In June I recieved another letter from SS stating that they had received my paperwork and I would hear something within 90 to 120 days. As usual nothing has come of that and even Binder and Biender told me that they knew that was wrong as well. SS takes their own sweet time doing anything. So i am still calling the doctor for predisone all the time. In the month of July, I was on medpaks all but about 5 days. I was trying not to call in August but finally got to where I could not even sleep on my back, sides, or anything so I had to give in. But it is not working as well this time. I am taking things I am not supposed to take with it, but they work so I have to do what I have to do. I am not supposed to take Ibuprofen with the predisone or my methatraxate. Says it can cause liver damamge if used together for long periods of time. Well, Duh!!!! Guess what?? If I am without pain taking all of it together until SS does something, I am going to do it. Maybe if something severe happens to me SS will step up to the plate!!! After I am dead like they did my cousin. They approved her just before she died.
Well, that is the update for now. By the way, if I am every approved, I am going to be sitting on the doorsteps of the congress and senate until they change the way they do things for the peopel who really need them and have to be put on back burners so the drug addicts and lying butts can get theirs!!!!! You may see me in jail before it is over, because I will not give up!!!!!!!!
In June I recieved another letter from SS stating that they had received my paperwork and I would hear something within 90 to 120 days. As usual nothing has come of that and even Binder and Biender told me that they knew that was wrong as well. SS takes their own sweet time doing anything. So i am still calling the doctor for predisone all the time. In the month of July, I was on medpaks all but about 5 days. I was trying not to call in August but finally got to where I could not even sleep on my back, sides, or anything so I had to give in. But it is not working as well this time. I am taking things I am not supposed to take with it, but they work so I have to do what I have to do. I am not supposed to take Ibuprofen with the predisone or my methatraxate. Says it can cause liver damamge if used together for long periods of time. Well, Duh!!!! Guess what?? If I am without pain taking all of it together until SS does something, I am going to do it. Maybe if something severe happens to me SS will step up to the plate!!! After I am dead like they did my cousin. They approved her just before she died.
Well, that is the update for now. By the way, if I am every approved, I am going to be sitting on the doorsteps of the congress and senate until they change the way they do things for the peopel who really need them and have to be put on back burners so the drug addicts and lying butts can get theirs!!!!! You may see me in jail before it is over, because I will not give up!!!!!!!!
Monday, June 15, 2009
Another Hurddle to overcome and Hoop to Jump Through
Ok, I went to court with the DS ALJ (the Administartivfe Law Judge)on Novrember 21, 2008. I was told that they would reimburse me for my travel time to and from Savannah to Atlanta because the case was still in Atlanta at the time. Well, it has been almost a year and there has been NO MONEY yet. It is going to be about 200.00 as far as we can make out because I had to travel 243.78 miles one way to go to court that day. So here again we are at a waiting game. I called them everyday for about 3 weeks and never talked to anyone. They sent me to voicemail and no one ever returned the calls as they said they would. So my husband started calling and they would transfer him to a person who would exlpain that they were behind and it could be up to 3 months!! Yeah, right!!! Man their 3 months must be longer than mine. That was the first of this year about mid January. Almost 6 months ago now. Well, when Binder and Binder took my case, they called also and are being put off as well. On Friday of last week my husband called again and was told no one was available to talk to so he left word for a Mananger, not a Supervisor to call him and as of today he has had no phone calls and he has tried to call today with no success. They are now BLOWING him off too. So if you have to travel for your hearing there is a place on the paperwork they send you that says you can get money first if you need it for traveling. I STRONGLY SUGGEST THIS OPTION!!!!! If not you will never get any results. They are very good at avoiding calls from you, your attny or anyone else calling on your behalf. Just a few suggestions as I have been there done that. If there is anyone out there in the same position, let me know what you did to get your money.
Well, so long for now. Predisone is a great drug but only for short time use. Even the doctors won't leave you on it long so I don't know why SS DS thinks it is okay to live on it just to keep from having to pay the money you have worked all your life to get!!!!!
Well, so long for now. Predisone is a great drug but only for short time use. Even the doctors won't leave you on it long so I don't know why SS DS thinks it is okay to live on it just to keep from having to pay the money you have worked all your life to get!!!!!
Sunday, June 14, 2009
No Change
Ok no change at this time. I have been back to the ER with more swelling and hurts. My left hand was swollen so bad that I had to go to ER and they put it in a splint to prevent me from moving it. As luck would have it I am left handed and this was a problem. I also have gotten to where I can't hardly get up and down and all of my joints, knees, arms, elbows, shoulders, and all major points on my body hurt so bad i can't sit, stand or even move without sever pain, but still trucking due to SS Disability says I am not disabled and not entitled to anything. They won't even give me medicaid/medicare so I can get medicine to prevent all of the problems I am having!!!! So the war goes on.
Tuesday, June 2, 2009
New Development in Disability
I know that it has been a while since there has been any post on my blog, but there have been several reasons. The first one is that it took a while to get everything together for Binder and Binder and myself to get things ready. Now they have everything they need and have started the process for me. I don't have to deal with the SS Disability Office at all. If they contact me I am to tell them to call Binder and Binder and let it go at that. So on Saturday, the 30th of May, I received information in the mail from the SSO has received my new claim for dsiability benifits. They sent me the information that was sent to them by Binder and Binder and I am to keep it for my files. This is the new claim that they filed from December 2008 to now. They said I would hear something, again in 90/120 days on my claim. As if I haven't waited 3 years already!!!!! Anyway, Binder and Binder are alos still working on my appeal from where I had to go before the judge and was again turned down. They are appealing that to the Appeals Board at this time and I am still waiting to hear on that one too.
My next reason for no post was that in April my grandson was pushed from his skateboard by a dog and he cracked his skull and was in the hospital for two days to make sure he was okay. He was knocked off his skateboard and was taken to his dad and he statred throwing up blood immediately. His Dad took him to the ER at the local hospital and they told him that it was not blood it was koolaid. Was pretty thick koolaide my son said. Anyways, they let him sit in the ER throwing up blood for almost 3 hours before the took him back to be seen. They immediately transferred him to Scotish Rite hospital in Atl. because they were unable to treat his injury there. It gers worse or funnier depending on how you look at it!! The ambulance broke down 5 minutes from Scotish Rite and it took them 30 minutes to get another ambulance to transport him 5 miles. It is funny now but was not at the time.
The last reason is that when I came back from Atl. I began to hurt all over and I was in so much pain I could not hardly walk let alone type on a computer. I was like that about 2 to 3 weeks(I hurt so bad I don't remember how long) and I finalyy got up one morning to go to work and I was in soooo much pain that I was actually throwing up from pain. So I called in (first time in all the time I have been working at this 20 hour a week job) and told them I was going to the ER to get some help. The doctor took one look at me and asked me what was wrong and I told him and told him my feet hurt so bad and were so swollen that I thought the would pop open. He immediately gave me the strongest pain shot they had for my pain and a shot of cordizone for the swelling and the other problems associated with my RA. He sent me home with 3 days of nothing but bed rest to make things better and no work either!!! He also gave me a 12 day supply of Predisone to take for the rest of the swelling.
So there you have the news and what is happening. I am better now but am still having severe pain in my knees and ankles but am not saying how bad it is because I don't want anyone to have to worry about me. My left hand is really hurting from all the typing since I have to spread fingers that don't want to spread the right way. But I just wanted to let everyone know what is happening and how great Binder and Binder have been!!!
My next reason for no post was that in April my grandson was pushed from his skateboard by a dog and he cracked his skull and was in the hospital for two days to make sure he was okay. He was knocked off his skateboard and was taken to his dad and he statred throwing up blood immediately. His Dad took him to the ER at the local hospital and they told him that it was not blood it was koolaid. Was pretty thick koolaide my son said. Anyways, they let him sit in the ER throwing up blood for almost 3 hours before the took him back to be seen. They immediately transferred him to Scotish Rite hospital in Atl. because they were unable to treat his injury there. It gers worse or funnier depending on how you look at it!! The ambulance broke down 5 minutes from Scotish Rite and it took them 30 minutes to get another ambulance to transport him 5 miles. It is funny now but was not at the time.
The last reason is that when I came back from Atl. I began to hurt all over and I was in so much pain I could not hardly walk let alone type on a computer. I was like that about 2 to 3 weeks(I hurt so bad I don't remember how long) and I finalyy got up one morning to go to work and I was in soooo much pain that I was actually throwing up from pain. So I called in (first time in all the time I have been working at this 20 hour a week job) and told them I was going to the ER to get some help. The doctor took one look at me and asked me what was wrong and I told him and told him my feet hurt so bad and were so swollen that I thought the would pop open. He immediately gave me the strongest pain shot they had for my pain and a shot of cordizone for the swelling and the other problems associated with my RA. He sent me home with 3 days of nothing but bed rest to make things better and no work either!!! He also gave me a 12 day supply of Predisone to take for the rest of the swelling.
So there you have the news and what is happening. I am better now but am still having severe pain in my knees and ankles but am not saying how bad it is because I don't want anyone to have to worry about me. My left hand is really hurting from all the typing since I have to spread fingers that don't want to spread the right way. But I just wanted to let everyone know what is happening and how great Binder and Binder have been!!!
Tuesday, March 31, 2009
More help I hope
Last time I went to the doctor he gave me the names and numbers of drug assistant programs that would be able to assist me with meds. So I called one of the numbers today finally and I am getting paper work in the mail to fill out and send back to them. One of the meds I need and the one that helps the most is Rituxan and is 12, 000.00 for one IV and I have to have 2 of them within two weeks of each other. The other one is Humaria which is 3,600.00 for a three months supply. So for some one with little or no income, it is impossible to get. So hopefully help is on the way with this as well. I have made the initial call and paper work will be here in 5 to 7 working days. Horray horray!!!
A note on the attnys as well. I sent my paper work back to them. It went to Tampa Fl. so I am waiting on word from them as to what is my next step. As I said earlier, they are supposed to contact me with my own personal worker and they will handle SS/Disability directly. I don't have to do anything else at this time. So keep praying that this is the last time I have to go through this. As I am really swollen and hurting at this time. I can hardly walk and left hand only has three knuckles right now due to the swelling. But as anyone who knows me, I just keep going and going. I will not give up and I will not stop living just because I am in pain!!!! The tough have to keep going and I am a pretty tough old lady :)!!! I can not give up living because of the way the Government thinks I should be reacting to a crippling disease. I will be crippled soon enough without them trying to rush it!!
So my motto is keep on going and pray that they will come to their senses, sooner or later. I guess later than sooner as I see it now. After 3 years, sooner does not look like an option.
Thanks for all the support. I know that you guys do not leave comments and things but I do know that you read and that is enough support for me at this time to at least know that everyone takes the time to read and see the slooooow progress that we are making with this. Thanks again and keep on praying that things will finally happen. My friend says to call it before it happens and it will come to happen, but I have called it before to no avail. However, I am calling it again and praying that the call is right this time.
A note on the attnys as well. I sent my paper work back to them. It went to Tampa Fl. so I am waiting on word from them as to what is my next step. As I said earlier, they are supposed to contact me with my own personal worker and they will handle SS/Disability directly. I don't have to do anything else at this time. So keep praying that this is the last time I have to go through this. As I am really swollen and hurting at this time. I can hardly walk and left hand only has three knuckles right now due to the swelling. But as anyone who knows me, I just keep going and going. I will not give up and I will not stop living just because I am in pain!!!! The tough have to keep going and I am a pretty tough old lady :)!!! I can not give up living because of the way the Government thinks I should be reacting to a crippling disease. I will be crippled soon enough without them trying to rush it!!
So my motto is keep on going and pray that they will come to their senses, sooner or later. I guess later than sooner as I see it now. After 3 years, sooner does not look like an option.
Thanks for all the support. I know that you guys do not leave comments and things but I do know that you read and that is enough support for me at this time to at least know that everyone takes the time to read and see the slooooow progress that we are making with this. Thanks again and keep on praying that things will finally happen. My friend says to call it before it happens and it will come to happen, but I have called it before to no avail. However, I am calling it again and praying that the call is right this time.
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