Last time I went to the doctor he gave me the names and numbers of drug assistant programs that would be able to assist me with meds. So I called one of the numbers today finally and I am getting paper work in the mail to fill out and send back to them. One of the meds I need and the one that helps the most is Rituxan and is 12, 000.00 for one IV and I have to have 2 of them within two weeks of each other. The other one is Humaria which is 3,600.00 for a three months supply. So for some one with little or no income, it is impossible to get. So hopefully help is on the way with this as well. I have made the initial call and paper work will be here in 5 to 7 working days. Horray horray!!!
A note on the attnys as well. I sent my paper work back to them. It went to Tampa Fl. so I am waiting on word from them as to what is my next step. As I said earlier, they are supposed to contact me with my own personal worker and they will handle SS/Disability directly. I don't have to do anything else at this time. So keep praying that this is the last time I have to go through this. As I am really swollen and hurting at this time. I can hardly walk and left hand only has three knuckles right now due to the swelling. But as anyone who knows me, I just keep going and going. I will not give up and I will not stop living just because I am in pain!!!! The tough have to keep going and I am a pretty tough old lady :)!!! I can not give up living because of the way the Government thinks I should be reacting to a crippling disease. I will be crippled soon enough without them trying to rush it!!
So my motto is keep on going and pray that they will come to their senses, sooner or later. I guess later than sooner as I see it now. After 3 years, sooner does not look like an option.
Thanks for all the support. I know that you guys do not leave comments and things but I do know that you read and that is enough support for me at this time to at least know that everyone takes the time to read and see the slooooow progress that we are making with this. Thanks again and keep on praying that things will finally happen. My friend says to call it before it happens and it will come to happen, but I have called it before to no avail. However, I am calling it again and praying that the call is right this time.
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That's right....the power of life and death is in your tongue. Speak it, claim it, pray it! Don't EVER speak negatively over the things in your life. You want blessings right? CLAIM THEM ALOUD!!!!!!!!!!!
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